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TOPIC: 47 yr old female doctor with severe pectus

47 yr old female doctor with severe pectus 1 year 1 month ago #7238

Hello fellow Pectus folk. I am a 47 yr old doctor with a severe PE. I had a cosmetic repair (with an implant) aged 19 and thought that was the end of it. Over the years, I have always struggled with exercise, being slow compared to my peers, even though I do lots of it and was rather slim and muscular; I thought it was "just me". It didn't occur to me that it might be my PE, having been told as a 19 yr old that it was "purely cosmetic". Indeed I didn't learn about PE at medical school, nor specialist training to be a GP, which given it's prevalence in the community, is a bit disappointing. Over the past few years I have had some episodes of heart arrhythmias and in exploring possible reasons for this, I came across some articles about PE and the cardio-respiratory effects. I have since started reading everything I can get my hands on and searching the medical literature. I had an MRI for other reasons and asked the radiographer to also do a quick scan of my chest so I could see my PE. OMG it's hideous!!! (I'll post some images in due course). I didn't realise how bad it was as it is has been under a wedge of silicone for the past 28 years. I have asked myself was it this bad when I was 19 and I have just forgotten, or has it worsened? Either way, the bottom of my sternum is only about 2 cm away from my spine! I am keen to explore surgery and am just starting my journey to find an appropriate uk surgeon. Indeed Mr Joel Dunning directed me to this site and I am delighted to have found you all. I'd really appreciate any tips from other "oldies" out there who have had good experiences with UK surgeons. I look forward to hearing from you. :)

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47 yr old female doctor with severe pectus 1 year 1 month ago #7242

Hello JDL and welcome. I was 50 when I got Nussed and had a Haller index of 7.6. As you can see from many of the pictures posted, our PE was severe. Older adults with PE do have options and I encourage you to do your research. I opted to go with Dr. LoSasso (New Jersey now) and am very impressed with the results. Others recommend Dr. J in Arizona. I am 2+ years post-op and have another year to go before my two bars come out. After getting Nussed, I have far more energy and stamina than I used to and I credit my well-being to my doctor and the Nuss procedure. Beast of luck and do keep us posted on your journey.

47 yr old female doctor with severe pectus 1 year 1 month ago #7250

Its considerable but well doable in very ! experienced hands
if you send me an E-mail I can put you in contact with several women of same age and same or higher severity of PE who had endoscopic Nuss repair here
in Berlin-Buch beyond the age of 40 and a few beyond 50 .

out of our 1854 Nus repairs 254 were beyond age 35 and also the majority of the 179 redos we did mostly referred to us after failed repair in other centers , so your age should be no problem at all

I would like to ask you directly for a few more details on your personal symptoms and signs

yours

Prof. Dr. Dr.med. Klaus Schaarschmidt
Director of Helios Center for Pediatric and Adolescent Surgery
This email address is being protected from spambots. You need JavaScript enabled to view it.
Tel.: +49 30 9401-54400
Fax: +49 30 9401-54409

47 yr old female doctor with severe pectus 1 year 2 days ago #7423

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Hello JLD, how are you going? Have you considered any particular course of action yet? Thanks

47 yr old female doctor with severe pectus 1 year 2 days ago #7424

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Hello Schaar,

I'm 52, slim and do regular moderate weights and aerobic exercise, but my offiicial recently diagnosed severe Pectus has long inhibited my endurance, depth of breathing, fatigue impacting upon my ability to work so that I tend to do part-time and are not living as fully as I'm sure I could be. Would you have any suggestions on how I could approach this? Very good treatment options are either prohibitively expensive and/or considered 'cosmetic' here in New Zealand meaning that I can't seem to be able to apply to have it fixed under the public health system here. It's like a double edged sword. Suggestions please?

47 yr old female doctor with severe pectus 1 year 2 days ago #7425

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Hello Baked, you were nussed in your late 40s? That's encouraging to hear it is an option? I'm curious how this worked when ribs calcify during late teens? Thanks.

47 yr old female doctor with severe pectus 4 months 4 days ago #8941

Plesae write me an E-mail,

at age 52 repair is possible but challenging and for a good result you really require an extraordinary expert, which in my opinion you willnot find in the UK

>>>>We are a supranational reference center and have the largest European experience of > 1920 endoscopic Nuss repairs (12-58 years)
i.e. 120-150 Nuss/year ( > 150 Nuss redos most after Ravitch in other centrers ) + 3700 Ravitch total, during the last 34 years

to decide whether and which surgery your chestquires photos of your chest are usually perfectly sufficient for a first assessment
I require high quality photos of your chest from different angles- neck to umbilicus ( front, from both sides and from both sides obliquely )
taking a deep breath in BEST TAKEN BY A SECOND PERSON WITH A DIGITAL CAMERA (better than handy ) sent as jpg. Files and E.mail attachment

but X-rays particularly from the side are helpful as well


Prof. Dr. Dr.med. Klaus Schaarschmidt
Director of Helios Center for Pediatric and Adolescent Surgery
This email address is being protected from spambots. You need JavaScript enabled to view it.
Tel.: +49 30 9401-54400
Fax: +49 30 9401-54409

__________________________________________________
HELIOS Klinikum Berlin-Buch GmbH
Schwanebecker Chaussee 50 (D2-E-035) - 13125 Berlin
www.helios-kliniken.de/berlin
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47 yr old female doctor with severe pectus 3 months 3 weeks ago #8973

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Thank you Schaar for your response in you undoubtedly busy schedule.
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