enzh-CNfrdeitjaparuestr

Get Connected!

Come and join our community. Expand your network and get to know new people!

AuntPhoenix created a new topic ' Hello brother's and sister's' in the forum. 1 hour 54 minutes ago

I look forward to exchanging ideas and discussion topics with all of you. Please excuse me in advance if I seem blunt or terse at times, or make spelling mistakes. I've learned a lot here already just lurking around but this forum helped me so much!

Read More...

nikonf3 is friends with Hyde99X

Hyde99X replied to the topic 'Haller Index of 3.1 - Denied Surgery' in the forum. 2 hours ago

That's rough to hear. :( Keep fighting. I don't have much to recommend because I didn't even need to get my HI to be approved. Sent some x-rays, pictures, and got approved and covered. But then again I'm also in Canada.

Read More...

Santos thanked ipectus in topic My first post here - Hello everyone 7 hours 58 minutes ago
Hyde99X created a new topic ' Finally got my Nuss Procedure - Things so far (detailed)' in the forum. yesterday

Was a long time coming and finally had my Nuss done on August 31st. I had it done with Dr Kashif Irshad at Brampton Civic Hospital in Brampton, Ontario. I had my friend drive me 15 hours from Saint John, New Brunswick to have it done. Took many phone calls back and forth with next to no help from my old and senile family doctor (who has been trying to tell me for years New Brunswick Medicare would never cover it and for me to not bother trying) but it finally happened and was covered. The drive up there, it didn't exactly feel "real". Because I have lived the past 12 or so years of my life with very noticeable PE and the thought that my body would never look the same after this wasn't quite processed yet. Luckily I got some enjoyment before that in the form of a trip to Canada's Wonderland and a Blue Jays game at the Rogers Center in Toronto. Sadly I had a triquetrum fracture on my right wrist from a bicycle accident so some rides and water slides were off limits, but overall it was a last good hoorah before having extreme limitations for the next 3 years.

The day of the surgery came up, and I could hardly sleep the night before. Spent much of it pacing around worried because I know for a fact the pain will be severe. I get to the hospital, all checked in, my friend and parents out in the waiting area. Things were still sinking in for me. I got my clothes off and into the robes, had the IV put in my left hand, and after some paperwork was taken over to lay down in a bed. I was scheduled for 10:15am, but Dr Irshad got a bit swamped in the surgery right before mine, which is entirely understandable. The wait was nerve wracking because I just wanted to get it over with. Within the 2 or so hours it took for them to finally wheel me away, the anesthesiologist came over to talk to me, as did Dr Irshad himself. Explained some information, and then were ready to prep me. Fun fact. at home they misdiagnosed me with "mild" PE, but when the Dr came over to feel around my chest cavity, he said my condition was actually moderate instead. They heavily recommended I get the epidural due to how bad the pain would be immediately afterwards, so I agreed, not really knowing what it was. They then took me into a room to find the right spot on my spine for it to work, and that was a living hell. I went pale in the face, was breaking into cold sweats, and was completely nauseous, but they finally had it put in after about 10 minutes or so. I'm use to needles, but when it's going into your spinal area it's a world of difference. They then wheeled me into the operating room and moved me over to the table. At that moment it all sunk in and I was trying my best to not panic. I took one last look down at my deformed chest and knew in just a few moments I'd be out cold and when I next wake, I'd be in the worst pain of my life.

I don't remember much of being in the recovery room. Just a series of them adjusting dosages of lord knows what and asking me countless times what I felt on a pain scale of 1-10. After much mind-numbing pain, it finally went down to a 5, which was enough to move me to the room I'd be staying in. According to them I spent an extra 3 hours in the recovery room because of how long the severe pain lasted. I hardly remember getting to my room the first time. In total I spent 5 days in that room before I was discharged. The pain was very hard to put up with during this time, moreso on the first 3 days. I was very confused on the first day. Like, Shutter Island levels of confused. Time just began to blend together and become meaningless. Parents and friend didn't visit every day, but often enough to check in on me which was nice. The staff was overall friendly, and I probably had at least 4 different nurses throughout this time. The absolute worst thing was the catheter they put in my manhood because I couldn't get out to move the 4 feet to the bathroom directly beside my bed. They kept telling me physio would come in to try to get me out of bed and for me to not do it myself, but every time physio tried to get me even standing I would go white in the face, break into a cold sweat, and nearly pass out from nausea. It was the epidural and I told them for 2 days that was the cause. They didn't take it out till the 4th day, and were wondering why I couldn't get up, despite me telling them. I understand they probably had to get it cleared with someone else before removing it, but I remember feeling very frustrated with that. As soon as they finally removed it and the catheter, I was ready to make a mad dash for that bathroom, considering I hadn't showered in 4 days either and was feeling putrid. She told me not to get up and to "wait for physio" which wouldn't stop by for another 6 hours or so. She then left the room for a second and I was right. I was able to get up with ease. I often had my sunglasses on for my entire stay because my eyes get horrible for light sensitivity when I'm in pain, but that is nothing new. No matter how much I wanted to urinate, my body wouldn't let me, so I went back to the bed, relatively defeated. I got up to have a shower a few hours later. Finally able to urinate properly too. But it was the weirdest feeling. My manhood was sputtering like an old car giving out a mixture of air and urine. To be fair that continued for at least 5 days after I got back home. On one last thing to note, my appetite was virtually non-existent during this time and I ate very little. A few cups of jello, a couple donuts, and a fair bit of apple juice, orange juice, and water. Solid foods really didn't wanna go down. Funny, they would come and ask me in the morning what I'd like for my meals throughout the day and never brought me anything I could eat apart from the jello cups and the juice, so sadly much of the food went to waste. Every day they asked me if I wanted coffee or tea and I always said that I didn't drink either, but imagine my shock when it came in on the tray anyway. I can't really fault them for that, being one out of the hundreds of patients there I'm sure. All in all they were good.

On a side note, Dr Irshad himself, VERY handsome. Like, coming from a straight man, even I was questioning a few things. Gorgeous hair, great face, beautiful blue eyes, perfect English, and very skilled and kind. I could tell this guy was an expert and he was really pleased with the result for me. Amazing man, truly. He put 2 bars and stabilizers in.

I would have been let go on day 4, but my oxygen was too low so they kept me another day. I was finally discharged, and rather than walking all the way to the car, they got a wheel chair for me and went to the pharmacist to get the 3 medications they were putting me on (till they ran out at least, at that point I'd just go over to Tylenol Extra Strength). The medications were one pregabalin and one celecoxib every 12 hours, and 1-2 oxycodone every 4 hours (all which have run out by now). The drive was long and painful, and my parents took me for the second half of the drive, as my friend couldn't stop for the night due to scheduling restraints. I understood, and was at least glad to get a decent sleep in a decent bed at the motel we stayed at in Quebec. Finally got home and went right to bed.

Since then I've just been taking it one day at a time, doing my arm extension and breathing exercises like they advised. I'm a barber, so I'll be out of work for 2 months minimum. Didn't have much of an appetite for the first week once I got home, but it has returned to normal thankfully. Didn't have any bowel movements for that time either due to eating very little, but I guess it added up because by the time I had to have one, it was absolute hell forcing it out. I've been trying to take it easy, not lift anything over 10lbs, but I have to say the worst part is not being able to get a good sleep. Being forced to sleep on my back when I'm use to sleeping on my side or stomach hasn't been easy to get use to either. My mattress is like a rock and is easily 12+ years old. My parents thankfully ordered me a good new one, but it won't be here for another 3 days, so I've been sleeping on the slightly more comfortable couch. The second worst thing is my allergies are normally pretty bad so I'm use to sneezing a lot, but sneezing puts me into excruciating pain, like enough that I usually need to yell each time I do. Not even a complete sneeze. The pain stops me as soon as I begin to sneeze. Feels like everything is tearing. I have to force myself to keep good posture, and sitting up on my bed typing on my PC hasn't been easy on my back, so I might get the Neo-G Medical brace to provide me the support I'm missing. Only reason I'm up typing so much is because I'm going through my entire old cosmetology textbook to refresh myself on hair styling as I'll be looking to switch my license so I can take a salon position I was offered in Toronto, and I'll need to be on my A-game and create a portfolio worth impressing the owner (which is luckily my friends cousin that we stayed with). And I want to use my 2 months of recovery as efficiently as possible because I won't have time to get this information back into me once I'm back working full time. And that's really it so far.

On a side note regarding the images attached, I had the whole "cone boob" look before, and I guess I still have some man boob going on, but once I'm able to fully work out again (won't be for a long time) I'll be able to eliminate that and get natural looking pecs, right? It won't sag down like a crooked nose? All in all, I love the new look of my chest. Considering my usual man-boobage, this look is normal, right?



Read More...

Hyde99X shared a photo. yesterday

Got my Nuss Procedure done a little over 2 weeks ago. Uploading picture for reference.

robin replied to the topic '3 x nuss bars' in the forum. 2 days ago

Hello,

Here is an example of the distribution of the number of bars for a particular surgeon
(See table1, table2 and table 3)

www.ncbi.nlm.nih.gov/pmc/articles/PMC5056931/

3 bars is rather rare but happens for "old" patient with important deformity. The maximum I know is 4 bars. I hope your surgeon is used to the use of 3 bars. I personally have an extreme pectus and depending on the surgeon I was advised to get "2 bars", "2 or 3 bars" and "3 or 4 bars". I think it will finally be 3 bars.

Good luck with your surgery,

robin

Read More...

Malai created a new topic ' 3 x nuss bars' in the forum. 2 days ago

Hello!
I'm close to getting my nuss surgery for severe/extreme pe.
My surgeon is leaning towards using three bars - how many others here have three?
Any ladies out there with three?
What has been your experience?

Deborah

Read More...

robin replied to the topic 'Haller Index of 3.1 - Denied Surgery' in the forum. 3 days ago

Hello,

This video might help (or not...).

4:45-8:40 : www.youtube.com/watch?v=OKk1DwRJJjA

robin

Read More...

IRJJ thanked Pectus Services in topic PE & PC? 3 days ago
WhoseDent replied to the topic 'Taulinoplastia / Pectus Up' in the forum. 3 days ago

Hi Dr. Nunez,

I'm 23 with moderate PE. Thank you for sharing your knowledge of this procedure with the forum. I know it's not the most reasonable expectation, but I hope to go for Taulinoplastia when it comes to the US. If it takes three years I'll be 26. So I guess just after the effective range of the device (hopefully it'll still somewhat work as less of a dent is better than what I have now). Hopefully I'll still be flexible then.

Read More...

nycpectuspatient replied to the topic 'Haller Index of 3.1 - Denied Surgery' in the forum. 4 days ago

Thanks; to my knowledge I did follow the correct protocol; however, the CT was done with contrast and I did not fully focus on my breathing while the uncomfortable (burning hot) contrast fluid was administered The radiologist did seem a bit too cavalier about his instructions and the general vibe I got from the cardiologist was that he would be hesitant to operate, despite measurable losses in lung volume and performance (stress test) and a notable intent on the lower 1/4 portion of the right atrium, visible on the CT scan. I think that the difficult part for me is that the doctor that is reviewing my case does not want to recommend my case for surgery. Initially, the thoracic surgeon believed that my case was a shoo-in for surgery, but he seems to have done a 180 over the past few weeks. It really almost seem as though they are ignoring or downplaying the symptoms that have been getting progressively worse. Generally, I want to exhaust any other stateside options before I consider international travel; however, if that is the only option available, then that would be that.

Read More...

Friskyseal replied to the topic 'Haller Index of 3.1 - Denied Surgery' in the forum. 4 days ago

I believe the cut-off for insurance is typically 3.2? If I recall correctly. I'm pretty sure you can get a Nuss with some persistence. First off, did you follow the correct protocol when you had your CT taken? I don' t remember exactly what it is but it's the opposite of whatever the instructions typically are. You're supposed to breathe in as much as possible so they get an image of the depression at its deepest--but CT scans for other purposes have you breathe out so there's more space to see the organs, etc. Your doctor should have given you or the tech these instructions for the CT. If it wasn't done this way, its possible you could get over the 3.2 cut-off with another CT. Otherwise, I would ask the doctor to file an appeal with the insurance highlighting your symptoms.

Finally, last resort (and if you have a lot of money lying around)--Dr. Schaar in Germany will perform a Nuss on pretty much anybody.

Read More...

nycpectuspatient created a new topic ' Haller Index of 3.1 - Denied Surgery' in the forum. 4 days ago

Hi everyone! I'm am a 27 year old male that has a Haller Index of 3.1. The doctors that I have been seeing do not believe that this degree of deformity is sufficient for a Nuss procedure. Does anyone have any advice or perhaps any recommendations for corrective procedures or any other doctor that might consider any corrective procedure?

Thanks

Read More...

nycpectuspatient replied to the topic 'Pectus Up (Taulinoplasty)' in the forum. 4 days ago

Thanks, Dr. Nunez. What is the minimum haller index for this procedure?

Read More...

Dr.Bernardo Núñez replied to the topic 'Pectus Up (Taulinoplasty)' in the forum. 4 days ago

Simple!
Choose Nuss or Ravitch procedure if you want to be operated (before die of course) :-)

Read More...

A visitor found helpful a review for Dr. Ellen Reynolds, written by wildwestmom 4 days ago

Dr. Reynolds is the most compassionate, competent, amazing doctor I have ever met. She answered all of my questions, never made me feel rushed, and...

Adrian has a new avatar. 4 days ago
Adrian replied to the topic 'Pectus Up (Taulinoplasty)' in the forum. 4 days ago

Dr.Bernardo Núñez wrote: I did this procedure in a man over 40, but it was so hard (no flexibility of his thorax).
The patients with 18-20 years who have already been operated, can be considered as adults in all effects, but young adults (they have flexibility). I think in children, Taulinoplastia ( pectus Up) is the best option. However, it is at this moment difficult to assure if in your case (adult over 25) this method will be effective.
I think age is important.
Kind regards

Well, that's very discouraging, especially coming from a doctor. What are we older people who have pectus excavatum supposed to do? Just die?

Read More...

Dr.Bernardo Núñez replied to the topic 'Pectus Up (Taulinoplasty)' in the forum. 5 days ago

I did this procedure in a man over 40, but it was so hard (no flexibility of his thorax).
The patients with 18-20 years who have already been operated, can be considered as adults in all effects, but young adults (they have flexibility). I think in children, Taulinoplastia ( pectus Up) is the best option. However, it is at this moment difficult to assure if in your case (adult over 25) this method will be effective.
I think age is important.
Kind regards

Read More...

Dr.Bernardo Núñez replied to the topic 'Taulinoplastia / Pectus Up' in the forum. 5 days ago

Thanks for info!
I agree with your explanation :-)

Read More...

A visitor found helpful a review for Dr. Ellen Reynolds, written by wildwestmom 5 days ago

Dr. Reynolds is the most compassionate, competent, amazing doctor I have ever met. She answered all of my questions, never made me feel rushed, and...

JohnBranch replied to the topic 'Pectus Up (Taulinoplasty)' in the forum. 6 days ago

Dr.Bernardo Núñez wrote: About 15.000-18.000 € + travel/hotel. More or less like the Nuss intervention in Spain, with less days and pain.
In our country, it`s free for spanish people under 18 yeras old , thanks to our healthy system.
Regards

Thanks for your reply. Can you do this procedure for adults over 35?

Read More...

JohnBranch replied to the topic '21 M. 10 days post-op. Pictures and questions.' in the forum. 6 days ago

alnso wrote: Also, how long do you think I'll have to wait before I have sex?

I'd recommend waiting until after you get married.

Read More...

JoelPectus replied to the topic '21 M. 10 days post-op. Pictures and questions.' in the forum. 6 days ago

It look very similar as the pre op, sorry. In addition I don't know why you have 4 scars instead of 2. Anyway follow your physician directions, good luck.

Read More...

Friskyseal replied to the topic 'Post-Ravitch Questions' in the forum. 7 days ago

1. You have just undergone a dramatic procedure to reshape your chest wall. Of course your experience of singing will be different. 2 weeks is no time at all to become accustomed to the change. It may not feel "normal" for you for 2 months, or even 2 years. There was always the risk of your pulmonary output being better, worse, or the same but different. Whatever the case, most likely it's just that you haven't gotten used to it and over time your experience of singing will feel normal again. In other words, you will adjust to the new normal.

2. You should be worried if you expect the sensation to come back where the incision is. Nervous tissue does not grow back. When they cut through the skin like that, they cut the nerves underneath. The broader sensation of numbness around the incision may improve but it can take a long time and it will likely never feel exactly as it felt before. Surgeons are not very good at explaining this to patients beforehand.

Read More...

Games created a new topic ' Post-Ravitch Questions' in the forum. 7 days ago

Hello,

I recently underwent the Ravitch procedure to correct my PE for aesthetic reasons.
I was told that because of the severity of my PE that the Nuss procedure would not be possible but the PE itself didn't cause me any physical distress (I guess I am just lucky)

after researching the procedure, I decided to go through with the surgery.

my first impressions post-surgery are that i am very pleased with the result and was pleasantly surprised that the pain was not nearly as bad as i thought. i stopped my morphine the very next morning after my afternoon surgery and have (in the past 2 weeks since then) have dropped my painkillers down to just paracetamol.

the things that worry me now are the following:

1. I am very passionate about music (though not in a careers sense) but have found that the surgery has made it difficult for me to sing because i find myself running out of air much more quickly. this is a slight improvement on the time directly after my surgery as, in this time, i could barely talk without stopping mid-sentence to breath. my concern is that i will always have trouble singing.
will my lung capacity come back fully?
if anything, i was expecting an increase in lung capacity and was not warned by my surgeon of any loss of pulmonary output

2. The area around my incision is still numb. the sensation has started to come back around the outskirts of my chest but not near the incision. should I be worried (2+ weeks Post-op)

any help with answering these questions would be appreciated.
Thanks :)

Read More...

zachcookhustles replied to the topic 'Dr Jaroszewski to give a TED Talk on September 10th' in the forum. 7 days ago

Wow, that's bound to be interesting. Glad I learned about that through here! Will have to watch the talk once its put out on youtube.

Read More...